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Team ACCelerate - Seattle


Team Captain:  Ms. Amy Heller
Bike Count:  Three-Bike Team
Per Bike Average:   $2,623

Location:   Seattle, WA:
Date: 
Time: 

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$15,000
Fundraising Goal
$7,869 Fundraising total
$7,869 Fundraising total
Team Honor Roll
December Match
$1,200
Ms. Kylie Phillips
$1,000
Diane Matson Stephens
$700
Bryan & Amy Heller
$500
Corporate Match for Bryan & Amy Heller
$500
December Challenge Match
$350
Brave Like Gabe foundation
$284
Mick Phillips
$250
Jeanne Tranum
$250
Lyn and Dennis Matson
$250
Baskin Robbins - West Olympia
$250
Team ACCelerate T-Shirt Profits
$154
Anonymous
$150
Anonymous
$130
Grandma
$100
Rich P
$100
For Lauryn
$100
Heather Kennedy
$100
Heather Smith
$100
Jennifer Helget
$100
Kathy Randich
$100
Anonymous
$100
Karin Young
$100
Corporate Match for For Lauryn
$100
Ginni Barry
$100
The Winkley's
$100
Lj Bryant-Stein
$100
Nicole Allen
$60
LeReine
$58
A. Skinder
$50
Tanya Mote
$50
Nikki Spaulding
$50
Donna Rask
$50
Anonymous
$50
Andre
$50
Annabel Matos
$30
Krissie Gerrish
$30
Anonymous
$25
Gary and Lindy Kennedy
$25
Mom of a ACC Warrior
$25
Anonymous
$25
Anonymous
$22
Roster
Raised
$2,508
Team Gifts
$100
Team captain
Denotes a Team Captain

JOIN THE BATTLE. Beat Rare Cancers.

WELCOME TO OUR TEAM'S PAGE!

I’m riding and raising money for rare cancer research. Will you help me make a difference by donating?

OUR RARE CANCER STORY
My name is Amy Heller and I'm the Team Captain for Team ACCelerate, Seattle. In May 2017 my 14-year old daughter was diagnosed with Adenoid Cystic Carcinoma (ACC), a very rare head and neck cancer. She was treated at Memorial Sloan Kettering Cancer Center, having three surgeries and 33 rounds of proton radiation therapy.

When our daughter was diagnosed my husband and I found no research or information regarding children diagnosed with ACC. When we decided to go to MSK we figured they would know something about her cancer based on their stellar reputation in cancer research and large pediatric oncology department. As it turned out they knew very little because there had never been a child diagnosed with ACC at MSK.

Forced to face the reality of just how rare her cancer was and that she was going to be treated with the same protocol given to adults with this cancer my maternal instinct to protect my child kicked into high gear. With no standard of care, no cure, an no research specific to the kids diagnosed with ACC I decided to start asking lots of questions and doing a lot of research on my own. During this time I leveraged social media and found a large handful of families/patients around the world who were originally diagnosed with ACC between the ages of 0-20 years old (pediatric age).

While our daughter was still undergoing radiation treatments in September 2017, I founded ACCKT | Adenoid Cystic Carcinoma Kids + Teens to serve as a resource to the small pediatric ACC community that I was discovering. Just three short months later, we were given the opportunity to become a part of the Make-An-IMPACT initiative at MSK starting the following spring. To do that it would require raising funds through Cycle For Survival. We needed to raise $40,000 in just three and a half months. Somehow we did it. Within days after Cycle For Survival 2018 closed we had an approved IRB for our research through the Make-An-IMPACT program. That first year resulted in the initiation of the first ever study exclusively compiled of pediatric onset ACC patients.

To date, we’ve referred 24 patients from 7 countries around the world to our Make-An-IMPACT program for genetic testing. Ten of those patients have received their test results and several more are in the testing process now.

Team ACCelerate’s first priority is to continue funding the ongoing study of pediatric onset ACC through the Make-An-IMPACT program at MSK. Additionally we are excited that our growth is allowing us to also allocate funds to other ACC research taking place at MSK.

At the end of the day, I'm trying to save my daughter's life. I will do whatever that takes and I would be so appreciative if you'd consider making a donation towards our research for her and the other kids fighting this horrible disease.

Your gift can give people with rare cancers a better future through new and improved treatments. Since 2007, Cycle for Survival supporters have provided resources to hundreds of doctors and scientists to pursue bold ideas that have led to the FDA approval of new drugs, lifesaving clinical trials, and four state-of-the-art DNA sequencers that are aiding in key cancer discoveries.

50% of People with Cancer Have a Rare Cancer
Did you know that, when combined, about half of all patients fighting cancer are fighting a rare cancer? These are cancers you’ve likely heard of — such as leukemia, lymphoma, thyroid, ovarian, brain, pancreatic, and all pediatric cancers.

100% of Your Donation Supports Research
Every dollar you give funds innovative studies and clinical trials led by Memorial Sloan Kettering Cancer Center (MSK). Discoveries made by MSK revolutionize how cancer is diagnosed and treated, helping patients everywhere.

6 Months for Fast Impact
Rare cancer research is underfunded, and too often people don’t have proven treatments. Time matters. Your gift will be in the hands of researchers six months after fundraising ends and, as a donor, you will learn about the projects supported.

I'm exciting to be joining my family in riding at Cycle For Survival in Seattle for our third year!
Thank you!

Amy Heller
Mom of Lauryn
National Team Captain, Team ACCelerate
Founder, ACCKT | Adenoid Cystic Carcinoma Kids + Teens


 

The Cycle for Survival Web page and e-mail are provided as a courtesy to participants to help them manage fundraising efforts for this event. Memorial Sloan Kettering Cancer Center or any of its affiliated organizations, or their officers, directors, agents, or employees do not control, nor are they responsible for, the contents of this Web page. Any views or information provided on this Web page are the sole responsibility of the participant.

The participant's Web page may provide links to other Web sites and does not imply an endorsement by MSKCC, its affiliated organizations, their officers, directors, agents, and employees of the materials contained at those Web sites.